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Unless otherwise noted, all recipes on this blog are free of gluten, peanuts, soy, corn, tomatoes, potatoes, shellfish, cane sugar, oranges, and yeast. Most recipes are also free of egg, dairy, and tree nuts (if used, reliable substitutions will be provided for these when possible). Check out my recipe index for a full list of recipes by category. 

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Monday
Feb012010

Pills, pills, pills...

Breakfast!

There's my breakfast pill dose.  Not too bad compared to some Lymies out there, only  nine pills!

The hardest thing about pills is the scheduling.  Seriously.  Take some pills with food.  Take some pills on an empty stomach.  Take some pills with certain kinds of foods.  Sometimes I'm having a hard time finding time to eat in my pill schedule.  No more snacking.  No more mindless eating.  Nope.  Meals are planned.  Pills are planned.  Everything is planned. I have a schedule to maintain.  Sometimes I'll find myself so hungry, but know that I shouldn't eat because I need to take my pills on an empty stomach.  Then I choose between pills and food.  I usually choose pills, just because I'm feeling militant.  But of course, I"m losing some weight now.  While that may get me back into my black miniskirt, I don't necessarily like the whole losing weight like this plan.

Ugh.

In order to make this whole pill organization thing possible, I got some of these snazzy pill organizers.  You know you're a Lymie when you use a weekly pill organizer for a single day.


I know own 4 of these little beauties, which means I only have to sit down and open all my pill bottles up for refills every four days.  Instead of using one pill organizer for a week, I use it for one day.  Each "day" slot I use for a single serving of pills - when I wake up, with breakfast, midmorning,etc.  It helps me remember what to take at what time of day, and know that all my drugs for that day (with teh exception of liquids and my refrigerated probiotics) are in one place.  Grab and go.  I made a chart of all my pills and what to take when to help me when I'm filling them. .  It has changed my pill life, seriously.  Not having to think about which pills i need when is such a blessing.

I'm finally having Herx reactions.  And the antibiotics are starting to take their toll.  I really felt great for a few weeks, but last week something shifted.  I feel like my adrenals are exhausted (literally, they hurt, and I'm getting dark circles).  The sides of my torso ache under my ribcage. I'm feeling a little flare up of the old bacterial vaginitis/yeast infection again (despite taking Diflucan and loads of probiotics).  My digestion is slowing down, and I feel cold. Ugh.  I'm getting stomach aches after meals again, something that I had let go of quite some time ago.  The chills are dreadful. I feel a weird shaky shiver up my spine and into my neck.  My skin feels like it is crawling.  And I have a searing headache that comes and goes.  My feed hurt. My eyes burn. I feel like I have the flu.

Herx, anyone?

It has only been four weeks!  How am I going to survive taking this for an undetermined amount of time?!

I'm struggling feeling pity for friends who are sick and complaining about body pain or aches.  I feel this way EVERYDAY.  I still go to work.  Taking a nap won't make it go away.  It won't get better in a couple days.  It will be there tomorrow, and it was here  yesterday.  It is here now.  It is here all the time, just in varying degrees of severity. Even a good day has the presence of a weight on my shoulders.  Combined with Seasonal Affective Disorder, my positive spirit is getting a little worn down.  Okay, not too severely, I'm still generally bubbly, despite feeling crappy. But I do feel a bit alone, isolated, and misunderstood by most of the people I see everyday.  And I do feel like holing up in my apartment, siting on my couch, and watching Law & Order SVU on Netflix.

On the bright side, I shoudl be recieving my very own portable FAR Infrared Sauna on Wednesday. I can't wait.   I love love love infrared saunas and they make me feel relaly good, so I bought one.  And I should be finding out the results of my last IGeneX lab (Bart, Babs) tomorrow.  So, more to come.

Having this blog is helpful, because it gives me something to do while I sit and wait until I can lie down.  I have to wait at least 30 minutes after taking Minocin before I can go horizontal, so this is a perfect distraction! :)

xoxo

Kim

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Reader Comments (6)

Odd that you wrote about that, I wrote something similar today except yours is helpful and mine is whiny. Actually, I'd love to reblog this and show this to my friends if possible, if you don't mind. (http://lymedlife.wordpress.com/) I have a pillbox too- I never thought of having a month's worth, which is a great idea. The problem with me is that I still have trouble remembering when to take what...I usually have leftover.

(Where did you get your pillboxes from, btw?)

February 5, 2010 | Unregistered CommenterDeena

Yes, feel free to reblog as long as you credit my me and list my url :) Actually, I only have 4 pill holders - I use one of the weekly pill holder for each day! Each "day"slot is a serving of pills - when I wake up, with breakfast, mid morning, etc. It helps me remember what to take at what time of day. But since I only have four pill holders, I have to refill every 4 days. Better than every day thought! I just got them at Walgreens. I'll have to check out your blog, I always love making new Lyme friends :) Thanks for visiting!

February 5, 2010 | Unregistered CommenterKim Christensen

Great post Kim. My protocol just changed and I have a whole new set of pills, potions, drops and powders to take. It's been 4 days and I don't think I've gotten it quite all right on any day. I usually go for food over pills.

Let me know how the sauna goes. I really like mine. The best part is how much I glow after using it. I look healthy for a little while. It also helps me sleep better on the nights that I use it.

February 6, 2010 | Unregistered CommenterAshley van Tol

Kim,

I just found your blog today, and I am so glad I did. I've had a very rough couple of months since being diagnosed, and it feels good to know I'm not the only one with questions and frustrations. My doctor told me yesterday that my course of antibiotics (doxycycline) is complete and that I'm "cured" but I don't feel any different, and am skeptical, just as you are. I've had a number of atypical symptoms that don't make any sense to my doctors (heart palpitations and that crawling out of your skin feeling that you described, for sure). You said you've been to an accupuncturist, which I've considered. Have you found that helpful? Just curious.

Anyway, thanks for sharing your process, and I do hope all of us lymies are on the mend soon!

-Danielle

March 26, 2010 | Unregistered CommenterDanielle

KIM!!!!!! great post.. where did you get your cool medicine organizer... did you say?? did my lyme brain miss it?
I confess I am so overwhelmed with ALL my supplements and junk...
and NOT having a dr right now..
I am not doing anything..
except left over antibiotics. thyroid meds. probiotics. migraine meds. yep. i think that is it.
i have
cats claw (the good kind) and vit c, d, xyz, (ha ha) and folic acid, and ooooodles of other things i OUGHT to be taking .. but it OVERWHELMS ME...
ugg
thanks for the post!
perhaps I will look at my meds and attack...

or...
send you money to come visit me and help me get my life in order... wouldn't you LOVE a mini vacation? lol :) (((hugs)))
have a SUPER EASTER

April 2, 2010 | Unregistered Commenteranika

yeah i was diagnosed in July, after being in the hosptial they put me on on four weeks of doxy cycline-i ended up taking five though. and i didnt start to feel better until about two months after i finsihed. I remember going back to the doctors in D.C and telling him I still felt like crap. all he said was that it was "normal" I started following a glutin free diet which i ate mostly all veggies, fruits and stopped drinking alchohol and took fish oil, vitamin c, magnesium and milk thistle-that only lasted about two months though and I did feel much better. I also tried to exercise daily which helped. now almost (i still take fish oil and vitamin c now though) 8months later, I've had two casses of MRSA (staph infections), two bacterial infections in my throat, thumb and finger twitching, irregular and heavy periods and have have burning in my heart which i never had before. im thinking of going back on the glutin free diet since every doctor i go just ignores that fact that i had lyme disease and never thinks there is a connection- which i just don't know if there is but it seems pretty obvioius.

anyway goodluck to everyone! it will get better.

April 6, 2010 | Unregistered CommenterJess
Sorry, no comments/questions allowed right now.
Hi reader! My schedule as full-time grad student with two part-time jobs doesn't allow me the time to manage comments. I hope you enjoy what you find and can figure out answers to any questions you may have. xo